Emily’s story
Watch Emily share her experience with hypersensitivity to E. coli asparaginase and switching to RYLAZE as an adolescent patient.
Emily is quirky. She’s funny. Of course, she’s our sunshine.
She is very mature for her age and she is my heart, my star.
We were perfect. She was healthy. It was fantastic. In a day, everything changed.
My name is Emily and I live in Phoenix, Arizona. My family is really nice. We all complement each other really well—it's like the Wizard of Oz. The brains, the heart, and the brave. Two years ago, I do remember having these, like, horrible aches and pains. I went to, like, two different doctors and they told me that was just growing pains.
Fast-forward about a month, she said that she started to feel dizzy, and I noticed that she was starting to get pale.
We went to her doctor and the doctor’s like, “No, go ahead and take her to emergency.” Wow, like, that's the first time we ever found out that it was something big.
He told me I had acute lymphoblastic leukemia.
I didn’t go back to work for two months after that because we were in the hospital. It was insane, just surreal. In the Mexican culture, cancer just seems like such a bad word and I think it’s really important to ask questions.
I never had a family member go through it so it was all brand new to me, especially being that it was my daughter. There was nights where I didn’t go to sleep and I was just right there with her.
It was just super comforting to know that they were there with me and that… no, hold on, I thought I’d be the only one that wasn’t going to cry, I was going to brag about it afterwards.
The day that everything came to a screeching halt was a day that I did not expect to go through.
Alex took Emily as normal to her appointment for chemo.
I remember, like, snippets of it. My whole body feels weird. Not being able to control my arms. My legs like kicking everything.
I was just terrified.
I do remember them calling, like, a code blue.
All the doctors, nurses, staff, everybody came in.
I don’t remember what happened after that.
Emily went into shock. She got an allergic reaction to asparaginase.
It was like a day before she could actually, like, really come to.
Why couldn’t I have it instead of her? Because we don’t want our children to suffer. I would take it a million times as long as she could be okay.
All I remember is just, like, waking up, seeing my mom there. After my reaction, the doctor said we have a different medication that does the same thing, but it is a longer process. It was an immediate switch to RYLAZE after that.
Emily took RYLAZE for three months. I'm so thankful that there was an alternative.
I was on my last treatment and then I got to ring the bell.
She rang that bell hard, with all her might. She is currently in remission and she is very happy and excited to be where she is right now.
Once she was in remission, that heaviness that you feel was lifted. I can finally breathe for a little bit, yeah.
This situation has changed us for the best. We are stronger. We are more together as a family.
Emily has such an important role in this world. There is something in store for us that’s going to come from her because she's just truly amazing and she's always been a miracle.